Learning Disabilities 

We will invite you for your yearly review during your birth month.

Learning Disabilities Register – Patient Information - Contacts

ASSERT is a United Kingdom based support group run by volunteers who have direct contact with
people with Angelman Syndrome. The majority of the trustees are parents or relatives of children or
adults with Angelman Syndrome.
Web: www.angelmanuk.org
Address: ASSERT
PO Box 4962
CV11 9FD
Tel 0300 9990102
Email: assert@angelmanuk.org

The National Autistic Society exists to champion the rights and interests of all people with autism and
to ensure that they and their families receive quality services appropriate to their needs. The website
includes information about autism and Asperger syndrome, the NAS and its services and activities.
Tel: 020-7833-2299 Fax: 020-7833-9666
Helpline Tel 0808 8001050 Email: nas@nas.org.uk or supportercare@nas.org.uk
Web: www.nas.org.uk
Address: The National Autistic Society
393 City Road
London, EC1V 1NG

This support group:
Support and friendship for families and carers throughout Britain
 Raises awareness of Cri-Du-Chat Syndrome amongst the medical profession and the public.
 Raises funds to promote research through carefully selected projects.
 Gives information and advice to families and professionals.
 Publishes a newsletter with general items of interest for families and carers.
Email: office@criduchat.org.uk Web: http://criduchat.org.uk
Tel 0845 0942725
Cri du Chat Syndrome Support Group
POBOX 73631
SW14 9BS

S.O.F.T UK provides support for families affected by Patau's Syndrome (Trisomy 13), Edward's
Syndrome (Trisomy 18), partial Trisomy, mosaicism, rings, translocation, deletion, and related
Tel: 0330 088 1384 Email: enquiries@soft.org.uk
Web: www.soft.org.uk
Address: SOFT UK
48 Froggatts Ride
Sutton Coldfield
B76 2TQ

Fragile X
This society aims to:
 Provide support and information for Fragile X families from those who share and understand
their concerns and needs
 Educate, inform and advise the public and professional people about the prevalence and nature
of Fragile X in order to raise awareness and understanding of the syndrome and improve the
care of all people affected by Fragile X
 Encourage research into all aspects of the syndrome and publicise the results
Tel: 01371-875100
Email: info@fragilex.org.uk
Web: www.fragilex.org.uk
Version Date Published Review Status
4.1 November 2020 Updated April 2020
Page 8 of 9
Address: The Fragile X Society
Rood End House
6 Stortford Road
Great Dunmow

A registered charity and the only organisation in the UK which is dedicated to supporting people with
Prader-Willi syndrome (PWS), their families, carers, and the professionals who work with them.
Tel: 01332 365676 Fax: 01332 360401
Email: admin@pwsa.co.uk Web: www.pwsa.co.uk
Address: PWSA UK,
Suite 4.4, Litchurch Plaza,
Litchurch Lane,
DE24 8AA

Turner Syndrome
The Society provides accurate and up to date information on Turner Syndrome and the many aspects
of living with the condition on a daily basis.
Tel: 0141 952-8006 Helpline 0300 111 7520
Email: turner.syndrome@tss.org.uk
Web: www.tss.org.uk
Address: The Turners Syndrome Support Society (UK)
12 Simpson Court
11 South Ave
Clydebank Business Park
G81 2NR

Down’s Syndrome
“Helping people with Down’s syndrome to live full and rewarding lives. The only organisation in this
country focusing solely on all aspects of living successfully with Down’s syndrome.” They provide
information and support for people with Down’s syndrome, their families and carers, as well as being a
resource for interested professionals.
England and Wales
Tel: 0333 1212300
Web: www.downs-syndrome.org.uk/
Email: info@downs-syndrome.org.uk
Address: Langdon Down Centre
2a Langdon Park

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